As recommended by NHS England we have set up the UK patient registry for cannabis-based medicinal products, available free to enrol any patient who provides consent nationally.
The registry has been seamlessly integrated into the patient pathway and is based on an electronic interface provided by Patients Know Best, an IT company already used by the majority of NHS Trusts in London for communication between patients and their doctors. The registry ensures that cannabis-based medicinal products prescribing is developed in a responsible way as patient numbers increase, by capturing essential data including efficacy metrics, adverse events and patient-reported outcome measures using validated methodologies.
The anonymised data will be made available on request to the medical community for analysis and will greatly contribute to the body of clinical evidence whilst we await randomised clinical trials. It will provide an invaluable resource to guide health policy for the NHS and other health systems.
For further enquiries and how to enrol a patient, please contact: firstname.lastname@example.org
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Open to anyone in the UK taking medicinal cannabis, whether you are a patient of Sapphire or not, we value all information on how you find using this innovative treatment.
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